The hope to inform

There’s just times when I feel like giving up. I know can’t, but it’s just too much at times. There are times I wish I would have never found out I had IC, having to worry about what I eat, and always taking medications. I honestly just think that I’m afraid. Afraid of what comes next for me. Will I ever get better? Will it ever go away? Will they ever find a cure? I don’t know any of these answers, and I probably won’t know for a while.

I think this has just been hard on me, because I’m so young and now I’m always worried. Worried about my health and taking care of myself so I don’t get flares ups, or end up in the hospital. I really don’t think worried is the right word, more like scared. I want answers to my questions, but I’m scared it won’t be the answer I’m looking for.  I’m not sure how this will affect my future, but in many ways it has. I’ve been taking better care of myself and my health. Sure I don’t like the fact that I’m on a diet, because I love food, but it’s what I have to do to take care of myself.

I’ve realized lately while doing this project for class, I’m more aware of what is going on with my body in terms of having IC. I’m more open about it, like to talk more about my IC. I love telling people about it now, because with the project I’m not only educating myself but everyone I come into contact with.

 Just telling them that I have IC is a great start. Well yes and no, because they all look at me like I’m said something in a foreign language, but it’s amazing when people ask me what it is. I get the joy of explaining something to them, in a way that they will be able to understand. Once I start talking about IC, they start asking questions. It’s great and I feel more at ease each time I talk about it.

I share any information I find out with my friends and family, because they are my support group. I want others to know more about IC as well. I’m still waiting to her form the girl at my school which the nurse told me about. I think that once she realizes what I’ve done and been through, she will come back to school. I also hope that with this campaign project that people will start asking questions, and people who have IC can get more support from everyone around. That way we don’t have to feel like giving up, to know that we are stronger than this. THIS IS THE FIGHT  THAT WE WILL WIN!